Thursday, August 20, 2020
emotional morning...
This quote just did me in. It's from "One True Thing", Anna Quindlen.
Condensed outline: woman returns to her childhood home to take care of her cancer stricken mother. I'm not quite finished with the book, but I had to put it down. It made me cry too much.
I was with my mother every day of that week she was in the hospital in hospice care. Her poor heart couldn't handle the rigors of dialysis anymore, after enduring it 3 days a week, for NINE YEARS. She didn't have much of a choice, so she checked in to the palliative care unit, and that was it. The doctors told us she would lose consciousness after a few days, because her kidneys didn't function much anymore. But she didn't, she was awake until the end. She had gone from dialysis to the hospital in an ambulance, on a Friday afternoon in July, when Miss Charlotte Claire, our 15th child, was a little baby. She died the following Thursday, during the night, with my brother there. My brothers were taking turns staying with her during the night, and she waited until Bob dozed off, then let herself go be with Jesus.
The day before she died, she tried to get out of bed to go be with Jesus, but we told her she could just stay there and He would come get her.
My mother almost reveled in that week, can you believe that? She had all of her kids and grandkids visiting, her room festooned with crayon pics, her dear grandchildren professing their love, with flowers and hearts and scribbles. My brother Tom brought up some sweet potato fries on Tuesday, and she took one bite and declared it delicious, so he went back down to the cafeteria and bought several servings of them, as if he found the key to keeping her alive. She was barely eating anything at that point, I'm pretty sure that little taste was the last thing she ever ate.
My father had leukemia at that time, and was afraid of germs, with all the kids who were visiting my mom that weeks, so he would come up in the mornings when no one was there. He could NOT deal with it, he would call me, begging me to talk to her, to talk some sense into her, to talk her out of her decision. He couldn't comprehend life without her, and couldn't understand that it wasn't actually her choice to die. Her body just couldn't tolerate the dialysis anymore, and she didn't want to stroke out in the chair, she said.
After she passed, my dad gave me a little bag from the funeral director, which held my mother's wedding band. He said that since my sister Cheryl had gotten her engagement ring, many years ago, I should have the wedding band. I was truly touched, and wear it on my right hand. I look at my hand sometimes, my aging hand, looking so liker hers, with that ring on my finger, and I see how time flies. I'm only 14 years younger than she was when she died.
But that quote! "...learn to love what you have..." This goes for people in your life, but also your house or apartment, your circumstances in life.
I didn't start out to write a sad story. I was going to write how my father braved on for seven months after my mom passed, and how one Saturday morning in January, I woke up and my first thought was, "I don't feel like visiting my dad today." It was lonely and empty at that house without my mom. My dad was afraid of catching colds and flus, so if the kids went with me, they had to stay on the other side of the room, he wasn't giving out any hugs. They didn't like that house, with my dad so sad, and my mom not there. He gave them dollars and had candy jars, but still. So that Saturday morning turned to afternoon, and I resigned myself to a drive down the Thruway for a visit, when my brother called...my dad had gotten up from his chair, fallen down, and my brother thought it was a stroke...I asked Paul if I should head to the hospital, he said of course I should, but still, I did not want to. I was still raw from losing my mom, and did not want to face this.
We all gathered into a special little family waiting room, my siblings and I. No word on my dad, no word, no word, for so long that my younger brother finally went to the nursing station and told the nurse that if she didn't tell him where his dad was, he was going to walk down the E.R. hall and start pulling curtains open, and find him himself. She promptly pointed him to where my dad was...we surrounded his bed, told him we loved him, held his hand and patted his arm, things my gruff father would have pretended to hate, if he were conscious.
I resented that he passed from consciousness without hearing our declarations of love, lying there alone after his brain scans. They were busy that day in the E.R., and to them, well, he was a 70 year old man who had a stroke. They didn't know he was our dad. The doctor told us that evening that the brain bleed was severe, and even if by some chance our dad woke up, he would basically be...well, he really wasn't there anymore. So we could choose to leave him on the ventilator or we could have him unplugged and let him pass. We chose the latter. He was unhooked at midnight, and we stayed with him for an agonizing 8 hours before he took his last breath. I choose to believe that he did hear us, and that he felt the rubbing of his arms and the patting of his shoulders, as we thanked him for caring for us...
Back to reality, Char is asking me if we have gelatin...she wants to make tapioca bubbles...we have things to do, cupcakes to bake, and and and...because tomorrow, a party!!!!!
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12 comments:
So very sad. Your dads death was like reading my father in laws last few hours. It seemed like torture to us, watching him die a slow death. I often wondered if there was a shot to have him go faster. To not suffer trying to breath. My husband couldn't take it and asked, well sort of yelled, "give him something to make him comfortable!" But alas, there was nothing. His mother died on the top floor 12 hours previous, so , it was a hum dinger of 24 hours to say the least.
Isn't it something how such a small reading can trigger so much for us?
I hope your day is full of smiles and laughter and hugs from grand children! :)
Rose
I love hearing your memories of your mom and dad. My parents are still living, but I know we may head into that season at any time now. Hope the party goes well tomorrow!
Valerie
I am a firm believer that when folks are in that vegetative state, they can hear us. I won't upset you anymore on how I know...I just do. It's ok to grieve, no matter how many years or how much time has passed.
I just finished a book; A Letter from a Stranger by Barbara Taylor Bradford. Wow, did I ever ball like a baby. Books like that, should have a emotional response. I had to go back a few times, the jacket says India, no its set in Turkey. ANYWAYS, its ok to remember and grieve.
Sending you big hugs and if I was there, I would hug you regardless of the social distancing issue.
Correction...the name of the book is Letter FROM a Stranger. Geesh. lol
Hi Della, Well, it is a fact that hearing is the last sense to leave. I am a nurse and have had patients come out of comas and correctly report things they heard while comatose. I am sure your nurse daughters would confirm that.
You have mentioned your mother many times and it sounds as if you are very much like her. Once when I was sick in bed I went back and read from the beginning of your blog. I remember you saying that you missed your mother so much and decided writing was a way to feel connected to her.
Thank you for sharing such touching memories.♥️♥️♥️♥️♥️Susan
Della, I was told by the nurse as we were waiting for my Dad to pass (from colon cancer) to keep talking to him as the hearing is the last to go. He waited to pass until all of us kids were there with him. I want to say that your Dad heard all of you until he took his last breath. xoxox
I don't personally know you, but am sending love and a great big virtual hug tonight. Losing your parents is so darn hard. My mom had developed dementia, and my dad was trying to take care of her himself. Due to very bad knees he got around on a scooter, and dealt with her mental decline by becoming very angry with the world and all of the specialists trying to help her. He died of a heart attack in the bathroom while getting ready to shower. Due to my mom's dementia, she didn't realize how long he had been in there until it was too late. We brought her to our home and we had a wonderful live-in caregiver who took care of her for the final 11 months of her life while we were at work, and who became a member of our family. We watched my super smart mom who skipped grades in school and who could cook, bake, or sew anything decline until she did not have the abilities of a newborn baby. She died in our home on Thanksgiving day. Thank goodness neither of my parents died in terrible pain, but I would not wish Alzheimers on anyone.
Laurie in California
Laurie, on Thanksgiving day! What a blessing that you were there to take care of her, I'm sure it was heart wrenching to experience. Thank you for sharing.
Mary, thank you! I am sorry about your dad, but that he waited for his kids...little blessings amongst the sorrow...
Susan, it's so nice to hear that, especially coming from a nurse. You would probably have so much to talk about with some of my crew...some of the other kids get annoyed at the "hospital talk"...:)
Linda, I'll have to read that book so I can cry a bit more...this Anna Quindlen "One True Thing" was pretty good. And I would totally take the hug!
Valerie, thank you!
Rose, what a trial you went through! My daughter Emily, the NP, was actually on a local radio show a few years back, talking about death and how we Americans have such a hush hush attitude about it. Emily worked in the ICU at the time, and she was part of patients' end of life experiences on a regular basis. I told Em at that time that if I'm ever on life support, give me a bit to relax, (pipe some coffee through the IV, read me a good book, sing me a song..)then un hook me and let me go...I'm sorry. I cannot be serious for any length of time, it's my fatal flaw. Those hours spent with my dad, when he was dying, my sister and brothers, oh dear: one minute we would all be crying, the poor nurse (a young lad, brand spanking new), went out to get us tissues, and when he came back with them, we were all doubled over laughing. He was rather confused, we were embarrassed, but it's how we dealt with it. I also suffer from inappropriate laughter syndrome, which I totally made up, but it's not actually funny when something strikes me as funny, and it is NOT a good time to be laughing. My sister has it too, and we cannot go to somber events together, it makes the syndrome multiply by like 9 million percent.
Seriously though, thank you all for sharing and commenting, it's what makes us us, going through these things, and knowing we aren't alone in it is hugely comforting. Thank you!
Thinking of you and thank you for sharing.
Simone
Thank you for your comment, Della. I think one of the most heartbreaking things about watching my mom's mental and physical decline was knowing how absolutely mortified she would have been earlier in life if she had known what her life would become. Diapers, being spoon fed, losing all ability to problem solve even the simplest of tasks. I remember when she was still able to sit at the table and eat with us, we would have to put all of the serving dishes out of her reach like you would with a baby, because she would put her hand right into the mashed potatoes or green beans. Even when she was still able to talk and hold a simple conversation, she wouldn't understand that you had to turn the salad dressing bottle over for the dressing to come out. It was so sad to watch this type of thing.
Laurie in California
Never stop laughing! No matter what! :) Lets face it death sucks.... blunt but its true. And as Americans I think we are quite morbid when someone dies. I love the movie P.S. I Love You with Hilary Swank. Her husband dies *Gerard Butler* YUM... and they have some somber moments but mostly they sing and celebrate him! And that is how I want to overyone to be when I pass!
Laugh on! :)
Aw, that is very sad about your parents.
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